Government calls for evidence to ensure better access to health, education, social care and housing for people with Down syndrome
In order to create new guidelines for authorities to follow, the The government is calling on people with Down syndrome, their families, professionals and charities to testify.
The recommendations will ensure that people with Down syndrome receive the help and care they need to live longer, happier and healthier lives.
In order to meet their additional health, education, care and housing needs, people with Down syndrome require personalized support as their life expectancy has increased from 13 to approximately 60 years in one year. generation.
Gillian Keegan, Minister for Care and Mental Health, said:
I am aware that people with Down Syndrome are able to live full and independent lives with the right help.
To help organizations better understand how to provide adequate housing, education and the best health and social support, we need to work together.
Families no longer have to struggle in silence, and this guidance will help government agencies provide the appropriate assistance.
The Government and Dr Liam Fox, an MP, support the Down Syndrome Act, which requires the Health and Social Care Secretary to produce guidance on how to meet the needs of people with Down Syndrome.
Authorities such as the NHS, health commissioners and integrated care boards will subsequently be forced to comply with the advice.
These organizations will also appoint a named official to oversee implementation.
Patients with Down syndrome are more likely to have conditions such as congenital heart disease, dementia praecox, and hearing and visual loss.
There is not enough acceptable supported housing, and early childhood and education support may not always match needs and may be difficult to access.
The updated guidelines will make it easier for people with Down syndrome to get the support they need, which may include speech and language therapy as well as additional help with education, housing and care.
Although there are legal obligations and established care structures, obtaining services can be difficult.
What is required and how it should be provided will be specified in this guide.
The request for evidence will also consider what resources are available and what healthcare access challenges still exist.
The levels of support provided to ensure that personal care, community engagement and relationships can be maintained will be the main topic of discussion in adult social care issues.
The questions will focus on what is necessary for this to happen, as everyone has the right to strive to live as independently as they wish in their own home.
The demand for evidence in the field of education will be linked to more general reforms concerning alternative provision and special education for needs and disabilities (SEND).
Will Quince, minister for school standards, said:
Our efforts to increase the prospects of people in this country must be based on their experiences, which is vital.
I am aware of the critical importance of counseling in helping services improve people’s lives through my conversations with parents, professionals and children with special educational needs and disabilities, particularly those with Down syndrome. .
To continue our efforts to improve the SEND system for children and families across the country, I urge anyone interested to participate in this call for evidence.
The request for information focuses on Down syndrome, but it will also determine if other people can also benefit from the recommendations.
The public is invited to participate, as well as family members and caregivers who have another genetic condition.
This 16-week evidence request is open to everyone and will be open during this time.